Asher’s Story

  • Ash is 4 years old, began unexpected emergency treatment here in Las Vegas second week of November.
  • Within days was transferred via helicopter to UCLA and received a liver transplant
  • A chip was implanted in his brain following brain swelling and a brain bleed in order to monitor and drain fluid as needed.
  • The breathing tube that has been assisting his oxygen supply during the process, while under a coma, and undergoing all the testing, the stress on his body caused him to clench down so hard on his breathing tube it crushed some of his teeth, leaving his mouth bloody, which now requires the extraction of teeth.
  • After the transplant his toxin levels were increasing, the issue could be corrected with a stint to drain these toxins.
  • Most recently Asher has awakened from a coma on his own which is amazing news. He is not yet able to respond to commands with hand squeezes, but everyone is confident he will soon.
  • Most recently the brain team informed them after an MRI some brain damage was evident, but due to a lack of research, they could not pinpoint how he would be affected.
  • The doctors let his parents Anna and Adam know Asher would be there a while, with no clarification of how many months that really is.

 

Anna and Adam (Asher’s Parents)

  • Their residence is in Las Vegas, and are currently unable to leave their son and come back to work.
  • No timeline was given from doctors of when it would be possible to return to their home in Las Vegas.
  • The room they stay in with Asher has a curtain and a bed for Asher. It is set up like an operating room, ready for any emergency that may arise.
  • Anna and Adam share a chair for resting, walk down the hall to use the restroom and shower, and purchase food every day.
  • Finical support will be used to pay basic costs of living such as necessary bills for their home while they are away and unable to come back to Las Vegas, and hospital bills not covered by their insurance.

Asher’s Full Story …

During the second week of November 2017 Anna took her son Asher to his pediatrician with mild concerns due to his lack of energy and yellowing of eyes. During
the visit the doctor suggested a blood panel could be ran, and let her know he would write the order if she choose to investigate his symptoms further. At this point the doctor had no sense of urgency leading Anna to not feel it was incredibly necessary. A couple days later, Asher did not improve and began to have hindering pain in his stomach. Anna
followed up with the blood panel, twenty four hours later received a call that her soon needed to go the emergency room immediately due to exceptionally high bilirubin levels.

After many tests, ultrasounds, biopsy’s, and a plasma transfusion, four year old Asher was transferred by plane from St. Rose Sienna Campus in Henderson, NV to the pediatric ICU at UCLA in Los Angeles, California. Upon arrival their lives changed forever. Immediately following Asher’s arrival to UCLA, the liver team took his case on to treat
his acute liver failure. To date, the team of doctors working to keep Asher alive have not been able to determine the cause of his liver failure, but knew it was life threatening.
Asher required a liver transplant to survive. Fortunately a liver did become available and Asher undertook two back to back surgeries to receive his new liver. Sadly, that has not yet been enough. During Asher’s medical assisted a coma the failing liver affected more of his body. A chip was implanted in his brain following brain swelling and a brain bleed in order to monitor and drain fluid as needed. The breathing tube that has been assisting his oxygen supply during the process has also created yet another complication for this sweet young boy. While under a coma, and undergoing all the testing, the stress on his body caused him to clench down so hard on his breathing tube it crushed some of his teeth, leaving his mouth bloody, which now requires the extraction of teeth. After the transplant his toxin levels were increasing yet again, raising concerns of his body rejecting the new liver. After a biopsy it turned out that the issue could be corrected with a stint to drain these toxins.

Most recently Asher has awakened from a coma on his own which is amazing news. He is not yet able to respond to commands with hand squeezes, but everyone is confident he will soon. Most recently the brain team informed them after an MRI some brain damage was evident, but due to a lack of research they could not pinpoint how he would be affected. Everyone is hopeful the damage will be incredibly minimal or better yet, non existent. The brain team informed Anna and her husband brains heal slowly, so they are patiently waiting for their sweet son to hold their hand again.

Anna and her husband Adam, have been bedside with their son and never left his side since they first walked in the doors of the St. Rose Emergency Room in early November.
With that being said, aside from being emotionally unprepared for such a life changing and threatening crisis to their only child, they certainly were not financially prepared to
both be out of work for already a month. The doctors let them know Asher would be there a while, with no clarification of how many months that really is. It goes without
saying their incomes have come to an abrupt stop, yet bills continue to flow. During crisis such as what they are coping with they are unsure as to what they will medically be
responsible for. The room they stay in with Asher, has simply a curtain and a bed for Asher. It is set up like an operating room, ready for any emergency that may arise. Anna
and Adam share a chair for resting, walk down a hall to use the restroom and shower, and purchase food everyday.

Anna and Adam are amazing parents, strong, hard working, and sitting next to their healing four year old son waiting for him to be able to go home. What was once an energetic sweet little boy is now fighting for his life. He loves Mario Brothers, making videos of himself opening tiny toys and describing them, he would recite the alphabet backwards, his favorite song is “Yellow Submarine” and he even sang to the nurses at St. Rose before he was transferred.
This little boy is selfless, sharing, and kind. He showed me his collection of Trolls one day, I pointed out my two favorite, which were the hardest to find in stores. Later that day in the bottom of my purse I found those two tiny Trolls I mentioned I liked. As a mother myself I was shocked how a child as young as Asher paid attention to my personal likes and then made a point to give me something of his, without any expectation of anything in return.
There truly are not enough words or personal stories I could share with you to accurately depict the type of people Asher, Anna, and Adam are.

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