Asher’s Story

  • Ash is 4 years old, began unexpected emergency treatment here in Las Vegas second week of November.
  • Within days was transferred via helicopter to UCLA and received a liver transplant
  • A chip was implanted in his brain following brain swelling and a brain bleed in order to monitor and drain fluid as needed.
  • The breathing tube that has been assisting his oxygen supply during the process, while under a coma, and undergoing all the testing, the stress on his body caused him to clench down so hard on his breathing tube it crushed some of his teeth, leaving his mouth bloody, which now requires the extraction of teeth.
  • After the transplant his toxin levels were increasing, the issue could be corrected with a stint to drain these toxins.
  • Most recently Asher has awakened from a coma on his own which is amazing news. He is not yet able to respond to commands with hand squeezes, but everyone is confident he will soon.
  • Most recently the brain team informed them after an MRI some brain damage was evident, but due to a lack of research, they could not pinpoint how he would be affected.
  • The doctors let his parents Anna and Adam know Asher would be there a while, with no clarification of how many months that really is.

 

Anna and Adam (Asher’s Parents)

  • Their residence is in Las Vegas, and are currently unable to leave their son and come back to work.
  • No timeline was given from doctors of when it would be possible to return to their home in Las Vegas.
  • The room they stay in with Asher has a curtain and a bed for Asher. It is set up like an operating room, ready for any emergency that may arise.
  • Anna and Adam share a chair for resting, walk down the hall to use the restroom and shower, and purchase food every day.
  • Finical support will be used to pay basic costs of living such as necessary bills for their home while they are away and unable to come back to Las Vegas, and hospital bills not covered by their insurance.

Asher’s Full Story …

During the second week of November 2017 Anna took her son Asher to his pediatrician with mild concerns due to his lack of energy and yellowing of eyes. During
the visit the doctor suggested a blood panel could be ran, and let her know he would write the order if she choose to investigate his symptoms further. At this point the doctor had no sense of urgency leading Anna to not feel it was incredibly necessary. A couple days later, Asher did not improve and began to have hindering pain in his stomach. Anna
followed up with the blood panel, twenty four hours later received a call that her soon needed to go the emergency room immediately due to exceptionally high bilirubin levels.

After many tests, ultrasounds, biopsy’s, and a plasma transfusion, four year old Asher was transferred by plane from St. Rose Sienna Campus in Henderson, NV to the pediatric ICU at UCLA in Los Angeles, California. Upon arrival their lives changed forever. Immediately following Asher’s arrival to UCLA, the liver team took his case on to treat
his acute liver failure. To date, the team of doctors working to keep Asher alive have not been able to determine the cause of his liver failure, but knew it was life threatening.
Asher required a liver transplant to survive. Fortunately a liver did become available and Asher undertook two back to back surgeries to receive his new liver. Sadly, that has not yet been enough. During Asher’s medical assisted a coma the failing liver affected more of his body. A chip was implanted in his brain following brain swelling and a brain bleed in order to monitor and drain fluid as needed. The breathing tube that has been assisting his oxygen supply during the process has also created yet another complication for this sweet young boy. While under a coma, and undergoing all the testing, the stress on his body caused him to clench down so hard on his breathing tube it crushed some of his teeth, leaving his mouth bloody, which now requires the extraction of teeth. After the transplant his toxin levels were increasing yet again, raising concerns of his body rejecting the new liver. After a biopsy it turned out that the issue could be corrected with a stint to drain these toxins.

Most recently Asher has awakened from a coma on his own which is amazing news. He is not yet able to respond to commands with hand squeezes, but everyone is confident he will soon. Most recently the brain team informed them after an MRI some brain damage was evident, but due to a lack of research they could not pinpoint how he would be affected. Everyone is hopeful the damage will be incredibly minimal or better yet, non existent. The brain team informed Anna and her husband brains heal slowly, so they are patiently waiting for their sweet son to hold their hand again.

Anna and her husband Adam, have been bedside with their son and never left his side since they first walked in the doors of the St. Rose Emergency Room in early November.
With that being said, aside from being emotionally unprepared for such a life changing and threatening crisis to their only child, they certainly were not financially prepared to
both be out of work for already a month. The doctors let them know Asher would be there a while, with no clarification of how many months that really is. It goes without
saying their incomes have come to an abrupt stop, yet bills continue to flow. During crisis such as what they are coping with they are unsure as to what they will medically be
responsible for. The room they stay in with Asher, has simply a curtain and a bed for Asher. It is set up like an operating room, ready for any emergency that may arise. Anna
and Adam share a chair for resting, walk down a hall to use the restroom and shower, and purchase food everyday.

Anna and Adam are amazing parents, strong, hard working, and sitting next to their healing four year old son waiting for him to be able to go home. What was once an energetic sweet little boy is now fighting for his life. He loves Mario Brothers, making videos of himself opening tiny toys and describing them, he would recite the alphabet backwards, his favorite song is “Yellow Submarine” and he even sang to the nurses at St. Rose before he was transferred.
This little boy is selfless, sharing, and kind. He showed me his collection of Trolls one day, I pointed out my two favorite, which were the hardest to find in stores. Later that day in the bottom of my purse I found those two tiny Trolls I mentioned I liked. As a mother myself I was shocked how a child as young as Asher paid attention to my personal likes and then made a point to give me something of his, without any expectation of anything in return.
There truly are not enough words or personal stories I could share with you to accurately depict the type of people Asher, Anna, and Adam are.

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Annual Tommy’s Ride fundraiser

Our annual Tommy’s Ride on Saturday September 30th 2017 . Thank you again to Henderson Harley-Davidson, the Pioneer Saloon (OFFICIAL), Mountain Springs Saloon, Count’s Vamp’d and Saddle N Spurs Saloon for your partnership in making this another successful outing!

Tommys Ride Fundraiser | Las Vegas Tommys Ride Fundraiser | Las Vegas Tommys Ride Fundraiser | Las Vegas Tommys Ride Fundraiser | Las Vegas Tommys Ride Fundraiser | Las Vegas Tommys Ride Fundraiser | Las Vegas Tommys Ride Fundraiser | Las Vegas

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Adaptive bike giveaway

Awarded three adaptive bikes to students at John F Miller School. Why we do what we do-just look at those faces!!

Adaptive Bike Giveaway | Variety Children's Charity | Las Vegas

Adaptive Bike Giveaway | Variety Children's Charity | Las Vegas Adaptive Bike Giveaway | Variety Children's Charity | Las Vegas Adaptive Bike Giveaway | Variety Children's Charity | Las Vegas Adaptive Bike Giveaway | Variety Children's Charity | Las Vegas

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Boxoffice Magazine for Mondays Dark

What a week! Our tent was highlighted in the October issue of Boxoffice Magazine for our event at MONDAYS DARK. Thanks again to Mondays Dark for the opportunity and a fantastic event!!

Variety Charity Fundraiser | Monday Dark

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All Inclusive Playground ground breaking with Government Mayor Carolyn Goodman

Thank you City of Las Vegas Government Mayor Carolyn Goodman for the Proclamation recognizing our contributions to helping children with special needs in Las Vegas.

So very proud to announce; in partnership with the City of Las Vegas Government Parks & Recreation District, Mayor Carolyn Goodman and Councilman Bob Coffin, the ground breaking of Las Vegas’s first adaptive park for children of all abilities to enjoy! The park will be located within the Justice Myron E. Leavitt & Jaycee Community Park.

All inclusive park Las Vegas - Children's charity All inclusive park Las Vegas - Children's charity All inclusive park Las Vegas - Children's charity All inclusive park Las Vegas - Children's charity
All Inclusive Playground All Inclusive Playground
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Tommy’s Poker Run September 30 2017

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NATO Adaptive Bike Presentation

MEDIA ALERT

Variety of Southern Nevada, and The National Association of Theatre Owners Presents Three Adaptive Bike to Students at Las Vegas, John F. Miller School

WHAT: Variety The Children’s Charity of Southern Nevada is proud to be part of the adaptive bike presentation on behalf of The National Association of Theatre Owners of California/Nevada to three disable students at the John F. Miller School in Las Vegas. The bikes will be presented on July 26th at 10:30 am.

The National Association of Theatre Owners is the largest exhibition trade organization in the world, representing over 33,000 movie screens in all 50 states, and additional cinemas in 93 countries worldwide.
NATO of California/Nevada donated $7,000 to Variety The Children’s Charity of Southern Nevada for their adaptive bike program in June of 2017.

Variety The Children’s Charity of Southern Nevada, (a 501 (c) 3 organization) serves special needs children in the Las Vegas Valley and has donated in excess of $7 million worth of goods, services and money affecting more than 20,000 children affiliated with dozens of local agencies. Follow on Twitter: @VarietyLV or VarietySN.org

WHO:
– Jean Trudell, Principle Miller School
– Lee Craner, NATO Representative
– Ginger Land-van Buuren, President “Chief Barker” Variety the Children’s Charity of Southern Nevada

WHEN: Wednesday, July 26th, 2017 at 10:30 AM | John F. Miller School 3840 Pecos-McLeod Ave., Las Vegas, NV 89121

 

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Mondays Dark July 10

Monday July 10 – Get Your Ticket NOW
variety mondays dark

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Adaptive Bike presented to Jose Alvarado

Variety of Southern Nevada, and The Magic of Learning Children’s Discovery Center Presents Adaptive Bike to Jose Alvarado, Student at Las Vegas, John F. Miller School

WHAT: Variety The Children’s Charity of Southern Nevada is proud to be part of the adaptive bike presentation on behalf of The Magic of Learning Children’s Discovery Center to Jose Alvarado one of the many disable children at the John F. Miller School in Las Vegas. The bike will be presented on June 5th.

Jose Alvarado, is an amazing, six-year-old student from the John F. Miller School. Jose has made great strides in his gross & fine motor and communications skills over the past year. He is now able to wheel himself around the school in a standing wheelchair, feed himself and drink from a cup with minimal assistance. Jose can turn his head when addressed, follow one-step instructions and activate augmented alternative communication devices. This adaptive bike will allow Jose to play outside as well as further develop physical motor skills and endurance as he grows.

Tom and Tess Kelly, The Magic of Learning. “Tess and I have accepted that we can not change the world but we do have the power and ability to help change a child’s life, one child at a time. We got involved with The Magic of Learning a Discovery Center for children ages six weeks to twelve years old as a means to accomplish that goal.  It has been a learning journey for the both of us but we really enjoy the children. We have been fortunate to find and work with Variety of Southern Nevada as our missions coincide. The donation of this bike is only a start and we hope we can continue working with Variety and children in the Las Vegas Valley,” stated Tom Kelly. The Magic of Learning, LLC located at 709 E Horizon Dr. Henderson, NV 89015

WHO:
– Jose Alvarado (awardee) and family
– Tom & Tess Kelly, The Magic of Learning
– Vince Pagone, Board Member Variety the Children’s Charity of Southern Nevada

WHEN: Monday, June 5th, 2017 at 10:30 AM | John F. Miller School 3840 Pecos-McLeod Ave., Las Vegas, NV 89121

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Adaptive Bike presented to Gretchen Templeton

Variety of Southern Nevada, Presents Adaptive Bike to Gretchen Templeton, Student at Las Vegas, John F. Miller School On Behalf of CinemaCon 2017

WHAT: Variety The Children’s Charity of Southern Nevada is proud to be part of the adaptive bike presentation on behalf of CinemaCon to Gretchen Templeton one of the many disable children at the John F. Miller School in Las Vegas. The bike will be presented at Caesars Palace at CInemaCon during a special member breakfast Tuesday, March 28th, 7:30- 8:00 am at Caesars Palace, Palace Ballrooms-Emperors Level.

Max Jensen, is an amazing, fun loving sixth grader from the John F. Miller School. Max enjoys family time, school time and Max time. He is a social young man with a giggle that will melt your heart. Ever since Max learner how to ride an adaptive bike at his school his mom, and dad have been so happy and amazed to see his face light up and watch him experience an activity they never expected for him. When Max’s Mom found out they were nominated for a bike from Variety his Mom stated “we have always dreamt of going on a family bike ride together. To Max’s family a “Family Ride” is a pretty big deal!
WHO:
– Max Jensen (awardee) and family
– Ginger Land-van Buuren, Board President for Variety the Children’s Charity of Southern Nevada
– Erika Lopez, Executive Director of Variety the Children’s Charity of the United States.

WHEN: Tuesday, March 28th, 7:45 presentation, Breakfast event 7:30 – 9:15AM

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